Tuesday, June 29, 2010

A Major Milestone, One of Many to Come

Well, I can finally say it.  Now that the school year is officially done for the kids here I can finally let it out without jinxing it because the school year is over and WE MADE IT THROUGH WITH ZERO MAJOR INCIDENTS!!!!

I was sure Murphy would rear his ugly head in the last few days and blow it, but nope! :D

I'll admit, we did have a few high highs, like in the 20-22 (380-400) range at lunch, but very few.  On the other hand, we had no terrifying lows.  In fact 3.4 (61) was our lowest school low and that was just before lunch.

We had a hell of a time getting things set up, but after those first grueling weeks we hit our groove and rode it for ten months.  Now we did have our ups and downs, and he was maybe 50-60% of the time he was in range, but never the less his A1c was lower each visit.  I'd say most people probably couldn't understand how elated I am about this but I know everyone here can appreciate where I'm coming from.

The sad matter of fact though is that Jonathan is the exception, not the rule.  As much as we were persistent in pushing for at least adequate care to be put in place, we were also lucky.  Not many families are as lucky as we were and that needs to change!  There are people out there fighting for that change and families like ours that are backing them up, but we need all the help we can get (if you're in Ontario and want to help, send me a message and I'll fill you in on how you can make a difference).

Now on to summer camp.  This should be interesting.  There will be different activities every day and at least 1 field trip a week.  If anything, this will be wilder than school ever was so I'm sure there will be more to come on that.

In September, the board is switching to all-day / every-other-day kindergarten, so he will go Mondays, Wednesdays and every other Fridays.  The off days... still at the school, but in the daycare program.  And!... with any luck, hell be sporting his new pump (which by the way, I'm really leaning towards Animas).

But back to today.  Hooray for small victories!  Today is a fabulous day.  As much as we'd all rather not have anything to do with diabetes, one good thing that's come from this - the special days are that much more special!

Congratulations on a great JK year Jonathan, we're so very proud of you!


  1. CELEBRATE VICTORIES! Congrats on a successful school year! I live in the states, but will offer your efforts in Ontario lots of prayer. It's such an honor to see CHANGE happen because of parents like you.

    On a side note, we absolutely LOVE Addy's Animas Ping. She wore a different pump for over 2 years and we switched when they announced they were leaving the diabetes industry. I was sure I could NEVER love another pump, but I'm happy to report that I was wrong. Animas has far exceeded my expectations :)

  2. I'm so glad you had a successful school year! You should absolutely celebrate your victory!

  3. Yay for victories!!!
    We have been pumping for a whole week now... (that makes me an expert right? lol)

    But the ping has been great. There have been many times I would have had to dig it out from under him in bed... so I am loving the remote feature :)

  4. WOOT WOOT...Way to go on the school year. And, yes, summer poses it's own challenges, but you will do GREAT!

    We use the Ping and LOVE, LOVE, LOVE it. The remote rocks. It is easy to use. Animas has EXCELLENT Customer Service as well. Good luck and I hope to hear you are pumping by the 2010/2011 school year Marc.

  5. All victories are worth celebrating! Congrats on a wonderful school year - and I wish you the best of luck as you work towards changing the system for your super sweet boy and others just like him!

    You know, We LOVE our Animas Ping! The remote is great. THe small bolus amount is great. The pump is great all around! Of course, I know others who love their pumps, too - so you go with what you think will work best for you and your family.

    Have a wonderful summer!

  6. Oh, yes, hooray for small victories!!!! :) Hope you're enjoying the summer and camp is going well for Jonathan!